Orphan (rare) diseases affect fewer than five people in every 10,000. They are hard to diagnose, and it is often a long time before patients get the right care. Switzerland has adopted a national rare disease policy designed to improve the situation for those affected.
There is broad consensus on the general goals: diagnoses should be made in reasonable time, and patients should receive good quality care throughout the course of the disease. The idea is to support and bolster the resources available to patients and their families. Patients should receive socio-professional support with administrative matters. Furthermore, Switzerland’s active, targeted involvement in international research should be promoted.
Find out more here.