Latest issue of «spectra» on rare diseases

Berne, 11.5.2018 – The current issue is dedicated to the topic of rare diseases. It features the National Rare Disease Policy which is intended to support affected patients and their relatives with their most Important concerns.

spectra_SelteneKrankheiten

In Switzerland some 500 000 people suffer from a rare disease. Between 7 000 and 8 000 such diseases exist. There are so many of them that they account for a quarter of illnesses worldwide and are thus as frequent as one of the most widespread diseases.
 
Rare diseases are characterised by the low number of pa¬tients with the same rare disease and by their supraregional distribution, which complicates diagnosis and treatment and the conduct of studies. The National Rare Disease Policy (NRDP), which has been extended for two years (until 2019), is intended to support affected patients and their relatives with their most important concerns.
 
Read more in the current edition of Spectra.

Last modification 11.05.2018

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